We are not always given choices about what we can and cannot change in life. The sun rises and sets. The tide rises and falls and good and bad things happen all around us and we are but one person in a sea of billions.
Given the Global Pandemic of the Coronavirus it can be difficult to maintain hope when 24 hour news focuses all day and night on what is going wrong and the problems we do or may face.
In reality, life has been on this planet for billions of years and will continue long after we are all gone in some form or another. I myself believe in God and find it helpful to pray and find that faith does improve both how I feel and help me to always remain hopeful versus embracing despair.
Here are some suggestions to embrace hope and fight despair:
Spend time around positive people (follow CDC guidelines and social distancing of course)
Speak to friends or family on the phone
Read a positive book
Read a religious book
Repeat the Serenity Prayer
Exercise – yes this can be done indoors
Take a nap
Watch a favorite movie
Listen to music
Play a board game
Remember that each moment your mind can be thought of as moving more toward the positive or the negative and that you have a choice in how you talk to yourself and how you interpret the world. Do you know any optimistic people. Try to be like them when you feel stressed, it is amazing how some people stay positive no matter what.
As over 6 million people travel to be with loved ones this week according to the news this morning; I started thinking about the difficulties of celebrating Thanksgiving with Crohn’s Disease – a disease that by definition makes it hard or impossible to eat at time because Crohn’s Disease causes inflammation and pain potentially anywhere and everywhere in the digestive tract (esophagus, stomach, small intestine, large intestine/colon).
I am a survivor of multiple surgeries thanks to Crohn’s Disease and I give thanks to God and to my family that I am still here and alive to celebrate this week.
Here are some general guidelines to help me through Thanksgiving with Crohn’s Disease
Be thankful you are not in the hospital or having a surgery
Be thankful that you are surrounded by family that loves you
Eat Thanksgiving food according to how I feel, if I cannot eat at the dinner table, then enjoy the company of those around me, and do not eat or have an Ensure.
Rest activity with balance. If I need to go take a nap and rest more than others – there is good reason, I am sick with Crohn’s Disease and take a chemotherapy drug for Crohn’s and a biological infusion and this combines to feeling bad, being in pain, being exhausted, and being disabled
Thanksgiving meal is just another meal – The people, saying thanks, and the celebration is what matters
Vitamin D is a vitamin that is essential for optimal functioning and health along with bone structure and bone health. We have all heard that. But, in fact Vitamin D is a fat soluble vitamin that acts as a hormone and this book “The Vitamin D Solution” is a great source of information on how to “Cure Our Most Common Health Problems”
I just completed reading:
The Vitamin D Solution: A 3-Step Strategy to Cure Our Most Common Health Problems Paperback – February 22, 2011
Vitamin D is produced in the skin when you have direct sunlight of sufficient intensity.
First, if you living anywhere North of the Latitude of Los Angeles California then you will not be able to obtain sufficient sunlight for up to 6+months per year to enable your skin to produce Vitamin D.
Do not worry, you can produce enough Vitamin D during the sunny months.
I looked into this book after learning how common Vitamin D Deficiency is with Crohn’s Disease.
Supplements can supply the body with Vitamin D; however, in my case I am unable to take the Vitamin D supplements because I cannot digest them due to my Crohn’s Disease. Therefore, I was pleased to read this book to obtain knowledge about obtaining my Vitamin D through small amounts of sun exposure.
Check with your doctor before making any changes in your sun exposure habits or taking any supplements. This is not medical advice, you should always consult with your doctor before making any health related changes or decisions.
A new branding around the initiative is to make it more visible to the organisations. To succeed with SEO you need trust.Trust is the core component of Google’s relevancy-oriented search. Without trust, you’re simply not relevant. Yet, building trust is a double-edged sword and somewhat of a catch-22. For newcomers, especially, gaining visibility without trust […]
I have extensive education and training in behavioral management and treatment for insomnia as a clinical psychologist. Here is some general educational information about behavioral tips that have been proven to help you sleep better!
Skip the naps! Or limit them to less than 30 minutes.
Get rid of the clock or turn it around – stop checking the time!
Make your room comfortable, dark, and quiet when you sleep.
Tip: Try earplugs and light blocking window shades
Wait until you are tired to go to sleep
Wake up at the same time every day
If you cannot fall asleep within 30 minutes, get out of bed and read; then go back to bed when you feel tired.
Do not spend time in your bedroom except for sleeping in your bed. Watch TV, study, eat, etc.. in other parts of your home
Set-up a bed-time routine and stick to it!
Sleep happens when you relax so instead of “trying to sleep” instead notice that it is nice to be resting and sleep will happen.
Disclaimer: If you are having difficulty sleeping, this could be a sign of a medical condition, so first thing you need to do is to discuss your problem sleeping or feeling tired with your primary care doctor. For example, you may have sleep apnea and not know it and this and other medical conditions can be serious risks to your health if left untreated.
When you read the following article your view might depend on your knowledge of statistical methods, false positives, false negatives, and the fact that there are too many mediators and moderators (variables) that could also explain why certain people do not respond or “get better” with certain Crohn’s Disease Medications such as Humira or Remicade.
Getting better is not all or none. This news article that summarizes the journal results fails to mention that any symptom improvement at all in a patient with Crohn’s Disease most likely will IMPROVE Quality of Life.
“Remission” clinically is not the patient telling the doctor that they feel better. Instead remission involves colonoscopy, CT or MRI, blood tests etc. However, it is common and very possible that a person can feel “better or worse” than the test results indicate.
Due to all the potential variables we do not know about I find it a potential dangerous slippery slope for Doctors or Drug companies to deny trying a treatment like Remicade or Humira based on a genetic study. We do not know all the genes involved and even if we do – Genetics always explain about only 50%, the rest is environment, and other social and demographic factors that are UNIQUE to each person.
Crohn’s Disease affects all three layers of the intestine and current tests only look at the outer (on an x-ray, CT, or MRI), or inner (colonoscopy). The middle layer – which could be causing disease symptoms and disability is not being looked at.
Also, the small intestines often cannot be directly looked at on the inside layer even due to narrowing the colonoscopy must stop.
Trust yourself and find a good doctor you trust and work together as a team to find an individualized plan that will work.
Research looks at how events can be predicted in groups – it is unable to predict how an individual will react. Take a look at all the possible side effects or helpful effects of any medication and each individual person will have variability in what happens to them to one degree or another. For example, some people might feel nausea, others might feel fatigue, and another person might feel great!
This is my personal opinion and general scientific information. It is not intended to and cannot replace any advice or recommendations by your healthcare providers. You as a patient should follow medical advice and work with your doctor to make sure your healthcare needs are being met.
Many chronic health conditions require expensive medication for treatment just to allow for survival. Many would not have been able to access infusion treatments / other medications were it not for the financial assistance that has been provided by the drug companies themselves and other charitable organizations. Even with great health insurance including Medicare the patient is often responsible for 20% of the cost of a treatment or a copay for a medication. With medications such as Remicade, Humira, Insulin, and the like, that could mean hundreds to thousands of dollars each treatment. There is help! Read below.
Now many pharmaceutical companies have their own copay support programs.
I find the following website to be a great tool to find financial / copay help for almost any prescribed medication: Visit the link below:
If you are not able to afford your prescription medication for your health condition then please consult with your doctor’s office and they will be able to help you as well. It is a great idea to stay in contact with your prescribing doctor about anything regarding the medication or treatment.
Also, with open season coming up for the Healthcare Marketplace, you can always try to pick a healthcare plan that will cover more of your medication / treatment. Discuss with your healthcare provider and/or insurance broker.
Best of luck out there and I hope you can afford your medication!
I have heard it, you have heard, “oh no, it is raining outside, that ruins my plans… or why does it have to rain…” I have noticed a trend that many people make assumptions about the ability of the weather to “ruin” a day. This is not helpful thinking or entirely logical. Whether it rains or shines I can still enjoy my day and so can you. Reading and watching movies are enhanced by rainy days. Rainy day naps are wonderful. In fact, I particularly enjoy the rain, and that is because I decided I like the rain.
Wait… you can decide to change your thinking?
Yes, you can!
There are many years of research that supports the use of changing out thoughts to help influence our behaviors and emotions and in a positive manner. This school of thought did not begin with psychologists. However, currently if you want to do some reading look into Cognitive Behavioral Therapy (CBT), try to learn your new ABC’s from Rational Emotive CBT, or one of my favorites read about ACT (spoken like the word to “act” in a play), standing for Acceptance and Commitment Therapy.
I will skip over a lecture and simply state that it is possible to change one’s actions or behaviors, or thoughts and it can be good for you and modify or alter beliefs that work better for you or fit with your values.
So, I value being outside in nature. Rain is part of the natural cycle of weather and is important for LIFE, so therefore I like rain as well.
When I walk in the rain I think about those great times playing sports in the rain with friends or swimming in the ocean during a small rain storm as it made the waves bigger. Perhaps next time it is raining, instead of thinking the rain is a nuisance you will think – the rain is an opportunity to experience life, and by the way – if you get wet you will dry, and if you do not want to get wet you can use an umbrella – just beware of thunder and lighting and be safe!
I hope your day today is serene and peaceful as the scene below! Read on to learn more about your fellow humans! Below the surface many are suffering right now!
Today is a day celebrated by many unsung heroes around the world. People like me are in pain due to their chronic illness. They are your weekend warriors and you did not know it. In life we can not really see what is really going on with someone by looking at them. Have you ever seen a duck swim in a pond? They are graceful on the surface just gliding along! But below the surface they are paddling and moving around so fast – it is organized chaos.
So today when you walk around and see your fellow human being try to imagine that the person across from you might be going through something and you probably would not know. I think an important question to ask is: How is your health? How are you feeling? It does give the person the opportunity to return the social grace or really share. Also, people who do not feel good, are in pain or suffering often do not ask for help. When you say, call me if you need anything – most do not call
Offer specific help or ask, what is difficult for you to do? – Then help! If we all pay it forward it will make a difference!
Write your doctor’s appointment down in your calendar so you know ahead of time when you will be seeing your specialist or primary care doctor.
Keep a list of any medical appointments, hospital visits, or changes in medication and bring this to your appointment.
Bring in a list of your medications to your doctor’s appointments. Some physician offices will ask you to bring in a bag of all your prescribed and over the counter medicines. Be sure to ask your doctor’s office!
*****Write down a short list of a few concerns you want to discuss during your visit! For example if you have Crohn’s Disease:
Pain in abdomen (keep a daily log regarding your pain and what you ate, this can help your doctor)